Dr Inge Spronk^1,2,3, Dr Tsjitske Haanstra², Dr Carine van Schie², Dr Margriet van Baar^1,2, Dr Anouk Pijpe^4,5, Dr Annebeth de Vries^4,7,8, Dr Marianne Nieuwenhuis^9,10,11, Dr Sonja Scholter-Jaegers⁹, Prof dr Esther Middelkoop^4,5,6, Dr Eelke Bosma^9,13, Dr Kees van der Vlies^1,12, Prof dr Paul van Zuijlen^4,5,6,7,14

¹Association of Dutch Burn Centres, Rotterdam, Netherlands, ²Dutch Burns Foundation, Beverwijk, Netherlands, ³Erasmus MC, University Medical Center Rotterdam, Department of Public Health, Rotterdam, Netherlands, ⁴Burn Centre, Red Cross Hospital, Beverwijk, Netherlands, ⁵Association of Dutch Burn Centres, Beverwijk, Netherlands, ⁶Amsterdam Movement Sciences, Tissue Function and Regeneration, Amsterdam, Netherlands, ⁷Paediatric Surgical Centre, Emma Children’s Hospital, Amsterdam UMC, location AMC, Amsterdam, Netherlands, ⁸Department of Surgery, Red Cross Hospital, Beverwijk, Netherlands, ⁹Association of Dutch Burn Centers, Burn Centre Martini Hospital, Groningen, Netherlands, ¹⁰Hanze University of Applied Sciences Groningen, Research group Healthy Ageing, Allied Health Care and Nursing, Groningen, Netherlands, ¹¹Department of Human Movement Sciences, University Medical Center Groningen, University of Groningen, Groningen, Netherlands, ¹²Trauma Research Unit Department of Surgery, University Medical Center Rotterdam, Rotterdam, Netherlands, ¹³Department of Surgery, Martini Ziekenhuis, Groningen, Netherlands, ¹⁴Department of Plastic and Reconstructive Surgery, Red Cross Hospital, Beverwijk, Netherlands

Abstract:

Objectives

The mission of the three Dutch Burn Centres is to achieve the best possible quality of life, autonomy and reintegration into daily life for every burn patient. To achieve this, we have started the Highly Specialised Burn Care, Education & Research Programme. We are developing and implementing an approach in which the patient is an equal partner and includes the principles of value-based health care (VBHC) and shared-decision making (SDM).

Methods

We develop a VBHC-framework that builds on our existing clinical and patient-reported outcomes registries. With this VBHC-framework we learn from each patient by monitoring, analysing and evaluating provided care and its (patient-relevant) outcomes. Quality improvement teams will enhance uptake of this approach in our care. Outcomes will be used to develop decision aids to inform patients and support them and burn care providers in SDM.

Results

Three pivotal areas of burn care were selected: the timing of surgery of intermediate depth burns, the added value of tissue-engineered skin constructs, and the role of self-management in aftercare. These areas have been studied, however there is no evidence-informed consensus on best practice. As such, this project has an unprecedented opportunity to inform standards of burn care. By choosing the VBHC framework to address these knowledge and practice gaps, we are prioritizing the patient’s perspective and values.

Conclusion

This project will address urgent questions in burn care, result in improved evidence to inform best practice and strengthen a sustainable VBHC and SDM approach. Most importantly, this approach will support ongoing innovation and improvements as we strive to achieve our mission.

Biography:

Inge started her research career at the University of Sydney 10 years ago. Since 2016 she is working in the field of burns and obtained her PhD on the burden of burn injuries. Currently she is working as a reseach fellow at the burn unit of the Fiona Stanley Hospital